Ch Ch Ch Changes
Uh boy… it seems like every other week I’m trying to figure out another way to compensate for yet another change brought about by the entity ALS who continues to harbor in and reshape our lives. He is relentlessly annoying, but I don’t exactly hate him. I don’t have time to hate him. I have a child to raise, a house to run, lives to manage. So I’ve made room for him, tried to give him his space. But he’s a clingy dependent who won’t be ignored. He squirms and squiggles. I wish he’d settle, and just when I think he has, he wakes up screaming… he wants it all!
No matter how I try to live my life above him, I’m always in his reach, and there’s nothing he won’t pull to draw my attention back. Last week I moved out of the queen-sized bed and into a twin adjustable bed with an air mattress. Now I can sleep. That’s one for me ALS. Lew sleeps on the queen bed, a single ridge running midline under the blankets. He looks abandoned. That’s one for you ALS.
-kara