Experimenting with Lithium for ALS
I stopped lithium carbonate after just 4 weeks, because of multiple health problems, not all from lithium. Anyway, I’m good to start again, this time at a slower pace on increasing the dose, BUT… during week 2-4 of being on lithium, I had a big wave of progression in my arms and, to a lesser degree, in my speech. I don’t usually progress that rapidly. I was also sick with a respiratory infection at that same time, but strangely, my progression usually stops during illnesses, so I don’t think that was a factor. This progression has been permanent.
I’m so afraid to rock my boat… and I’m so afraid not to. If my son were not so dependent upon me, I would head into stormy seas to battle this beast… but as it is, I need to proceed as if he’s in the boat with me. Perhaps just 150mg/day for a good long while… until I’m seaworthy.