Kara Lynn .NET Blog

Proloquo2Go in the news:

Story and video here.

My nephew Josh will walk to raise money for his local ALS Association chapter in Atlanta on November 14, 2009. I have friends with ALS all over the world. I am so touched that Josh will walk in my honor. The ALS Association provides much needed services and equipment to patients and their families. My sister Kelly raised over a thousand dollars for our local New York chapter in just a few days! Way to go Kelly! Rock on Josh!

Sponsor Josh at his Personal Fundraising Page

It is my last thread, indeed.
My only connection.
My only method.
My lifeline.

I cannot let it fail me.
Where humans have.
Technology,
I commit to you.
Any price,
I will pay for you.
Respect you.
Love you.

You understand me.
You shine for me,
And love that I adore you.
I get you,
And you give so eagerly.
I bathe in all your loving power.
You love me back.
You never do me wrong.

Technology,
You stayed with my dying body,
Long after others walked,
Went on their way.

Technology,
You have always been on my side.
And you are the last one standing
by me.

-Kara

Thanks to Augmentative Alternative Communication on my iPhone, I will say more indeed! Yes, there’s even an app for that!

Apple is now featuring Proloquo2Go on their accessibility front page.
http://www.apple.com/accessibility/

• Proloquo2Go
  Assistiveware has released Proloquo2Go, a powerful, portable, and cost-effective Augmentative and Alternative Communication (AAC) application for iPhone and iPod Touch. Learn more

Too tired to move
Moving is work
So much work

Too hungry to eat
Eating is work
So much work

Too worn out to try
Trying is work
So much work

Too damaged to type
Typing is work
So much work

Copy and Paste

-kara

Home alone last night. Potty before bed. Stuck. Could not get up from toilet, even with walker/riser. Cried. Weaker. Slid to floor. Walked on knees down hall to bedroom. Hardwood on meatless knees. Bed too high. Found towel in basket on floor. Put under knees. Comfort. Drag phone from night stand. Press redial. Lew answers from grocery store parking lot. Hears my breathless cries. Coming home. I wait on knees.

I did not rescue
my peaceful heart
I did not keep life
safe and breathing
through all the
storms and wars
reckless aim of
thoughtless hate
I did not survive
the unsurvivable
I did not rise
and fly again
I did not!
I did not!
I did not
walk this far
to be kicked around by you!

You have nothing
to call your own
Your hands
feed only you
You lie low
wait for your share
You have nothing
to give
You have nothing
to show
You stand in the way
And I did not!
I did not!
I did not
walk this far
to be held back and down by you!

You have led a safe little life
a white little life
History belongs to others
those who step out into
the big world
and make their way
You scoff and mock
the brave, the daring, the believers
Even as we disappear miles beyond
your ability to see
Good riddance to you!
I did not!
I did not!
I did not
walk this far
to be destroyed and lost by you!

-kara

Born in the Spring
Hallelujah to the Sun
Hello world of Life!
You breathe in me to Sing
Wind and sun and purple storm
Every sky can lift me off
Dance me like in Heaven

—————————–

A burden from the start
Another mouth to feed
Anchors down
Feet on land, head at sea,
The sailor waits it out
His little captives serve on deck
While his big resentment sleeps away
Sinking deep
A life gone bad
A mind gone overboard
And the captives feel at fault

Stealing freedom
From the blame
Finding silence
From the lies
I have many times escaped
The unreality
of the fucked up shit
around me flying
And in my hiding
I have kept some happy safe

Many years
Rose above
But toxins stowed
Embedded in my cells
Hell oh world of Death
Slither in me strangling
Gravity, balance, Ability
Your goal relentless
Strip me naked
Wear me down
To bones and begging

Shove your face
Of shit and ugly
Up against my glass
I will bathe in sunlight
Overflowing from my cache
Of truth and peace and happy
And you one day
Will fall away

-kara