Kara Lynn .NET Blog

This made me feel much better today! I love that man!

You make me live…

Love,
Mommy

many times fallen,
always risen.
i am a phoenix,
and always have been.

trust
that i have been prepared for this.
trust
that this is just one more descent.
trust
that i will rebuild from even the fewest remnants.

trust.

-kara

Woo Hoo! Just last Wednesday I started Lithium Carbonate as an experimental possible treatment to slow the ALS monster, and so far, I am LOVIN’ my lithium! In the past few months I had noticed so much more arm and shoulder weakness. It really became apparent while driving, even though I drive very little and for very short distances. Steering has been a great challenge for a while, but more recently it has become such an impossible workout, that I often had Lew drive or I just stayed home. This was really making me sad. Driving is a freedom I love. When I’m driving my car with music playing, life is good and I am free. On Thursday I committed to taking Aiden to the Children’s Museum after being absent for months (it was a disappointing winter with Aiden and I sick a lot, and I had a couple falls, the last bad one messed up my collar bone and shoulder so I couldn’t drive at all). So to the museum we went. On the drive home I said to Rosa “I don’t know what’s going on, but it feels like I have power steering again!” Rosa said “Kara, every night I pray for you and Aiden.” Rosa is very positive. I call her “Dr. Rosa” because she really does know what’s good for me, and together, we are putting ALS out with the trash! Anyway, driving was an absolute pleasure on Thursday. And I’ve felt awesome every day since. Could lithium be helping so quickly? I think so, because I’ve combined it with some very potent determination… and Dr. Rosa!

Again, Woo Hoo!

For those of you who don’t know about the lithium study, here’s a good place to start:
http://alslithium.atspace.com/

Darkness may loom,
but never upon me will it land.
I do not fear these coming shadows,
for I have not armed them with trust, belief, or faith.

Darkness is just a period of time.
There is no place within it’s mystery.
I must keep moving onward,
and let no menace employ me.

Daylight, and my life unscarred,
await me beyond the storms that threaten.
No hand exists that is so powerful
as my unshakeable belief.

Darkness seeks like downward waters.
It’s reaching hands may brush beside me,
but I shall divert it’s path away,
and keep the focus of my life
steady in the light.

-kara

It starts now.
It is my way.
Here.
Right here
And you can’t deny it.
Anymore.

Saved.
The perfect source.
At the surface now.
Cleansed.
And free.
Swimming in.
This bliss of life.

Phoenix laughs
as she soars again.
“I see a beautiful girl”
she says.
And she holds me up.
She never left.
She never died.
She is source.
She is power.
Beyond anything.
The mortals know.

Phoenix laughs
as I soar again.
“You see a beautiful girl?”
she says.
And she lets me go.
I fly, and fly, and fly!
I close my eyes.
And dream of bliss.
I see her face.
A beautiful girl.
And reach to touch her.

-kara

Organic Sunshine burger on Rudy’s Colorado Cracked Wheat with sliced tomato and lots of Veganaise, whole wheat cous cous with chopped tomato and a splash of canola oil, a big tall glass of spring water with a half refill. Life is good!

-Kara Lynn

When I recover from ALS
I’m going to be careful
Not to fall into the old patterns,
Not to mistake my opposite
for my truth,
Not to forget what saved me…
Ever!
Not to forget!

When I recover from ALS
By then I will be free
I will know
and at the same time
not know
And I will be okay.

When I recover from ALS
I will be new
And ancient.
Knowledge will live in me,
but will rest peacefully,
And I shall discover life,
but my source will never fade again.

When I recover from ALS
I may not know how,
but I will have no doubt why.
Not from medicine,
Not from some other being
with claims to move and balance energy.
Not from the external world,
will my saving come.
The ability lies within.
Only I and my creator can know my energy
and how it should be balanced.
Only I and my creator know the truth
of how this dis-ease came to be in me.
And only my creator can lead me safely,
And only I can listen,
And only I can follow.

When I recover from ALS
I will not untune myself again.
I will love the beauty of my own world,
and seek not in the current of the racing world.
I will breathe long and deeply
and not hold in anything.
I will know my place, my meaning,
and finally my peace,
When I recover from ALS.

-kara

It was one of the best days I can remember. Last Sunday was Father’s Day, and Lew, Aiden, and I spent the day adventuring. First we all went up to the Catskill Animal Sanctuary (CAS). This was our first visit to the sanctuary. It was also one of the hottest days, if not the hottest day of the year so far. We brought a cooler full of food and had lunch under a tent at CAS before we took the tour. While in and around the barn we enjoyed the company of one very happy and absolutely adorable freely running baby pig. His name is Franklin and Aiden thought he was “some pig!” One of Aiden’s favorite movies is Charlotte’s Web. I think he must have thought we were in the presence of Wilbur himself! The delightful little piggy who was rescued from certain death, and who now rejoices in sunshine and the company of friendly animals, tireless volunteers, and adoring visitors at his new home at CAS.

After meeting many of the animals at the sanctuary, we boarded the van and cranked up the AC. As we cooled off, we headed down to New Paltz. We ended up at The Bakery, one of Lewis’ favorite spots. We sat inside, out of the smoldering heat. Lew and Aiden had cold juice and I had a soy cappuccino. Aiden really enjoyed himself in the kid’s corner upstairs at The Bakery where they had all kinds of wooden toys and a wooden miniature store front with a play cash register. It provided a good opportunity for Mom and Dad to sit back and relax too!

After coffee and juice, we drove the van down to the rail trail (it was too hot to walk through town). We got on the trail and into the shade quickly. The walk was relaxing, but when we came to a long stretch of shadeless trail we decided to head back. It took some arm-twisting, but while we walked I convinced Lew that we should drive over to Minnewaska if only to stick our feet in the cold lake for a moment, or feel a cool breeze roll in off the water.
It was late in the day when we got there and it was so much cooler than it had been in town. Aiden marveled at the giant rocks that walled some of the path down to the lake.

We relaxed and played on the tiny beach for a while. The coolness of evening around a mountain lake was enough to get giddy over.

Finally, Lew took Aiden into the water for some splashing, giggling, and fun. After the boys had enough silly water play, we headed back up toward the parking lot. We got Aiden’s dinner from the cooler and fed him on one of the great rocks in the big grassy area by the van.

With Aiden all fed, and very tired out, we headed back to town so Lewis and I could finish the day with a nice dinner out (something we rarely get to do). Aiden fell asleep almost as soon as the van started moving. When we arrived and parked at the restaurant, we lifted him out of his car seat and into the stroller. We were sure he would keep sleeping, but we were wrong. He woke right up, big grin on face, ready for our next adventure! What a trooper! We all went inside and Lew and I had a delicious and large meal while Aiden enjoyed just being there, with us. He stayed awake and cheerful the entire time. A perfect ending to a perfect day.

-kara