Woo Hoo! Just last Wednesday I started Lithium Carbonate as an experimental possible treatment to slow the ALS monster, and so far, I am LOVIN’ my lithium! In the past few months I had noticed so much more arm and shoulder weakness. It really became apparent while driving, even though I drive very little and for very short distances. Steering has been a great challenge for a while, but more recently it has become such an impossible workout, that I often had Lew drive or I just stayed home. This was really making me sad. Driving is a freedom I love. When I’m driving my car with music playing, life is good and I am free. On Thursday I committed to taking Aiden to the Children’s Museum after being absent for months (it was a disappointing winter with Aiden and I sick a lot, and I had a couple falls, the last bad one messed up my collar bone and shoulder so I couldn’t drive at all). So to the museum we went. On the drive home I said to Rosa “I don’t know what’s going on, but it feels like I have power steering again!” Rosa said “Kara, every night I pray for you and Aiden.” Rosa is very positive. I call her “Dr. Rosa” because she really does know what’s good for me, and together, we are putting ALS out with the trash! Anyway, driving was an absolute pleasure on Thursday. And I’ve felt awesome every day since. Could lithium be helping so quickly? I think so, because I’ve combined it with some very potent determination… and Dr. Rosa!
Again, Woo Hoo!
For those of you who don’t know about the lithium study, here’s a good place to start:
http://alslithium.atspace.com/
