Archive for July, 2008

To Aiden

Thursday, July 24th, 2008

You make me live…

Love,
Mommy

Survivors

Thursday, July 24th, 2008

many times fallen,
always risen.
i am a phoenix,
and always have been.

trust
that i have been prepared for this.
trust
that this is just one more descent.
trust
that i will rebuild from even the fewest remnants.

trust.

-kara

Teenager Diagnosed with ALS

Monday, July 21st, 2008

ALS can strike anyone, at any age. Meet Haley Stevens:

http://youtube.com/watch?v=oLXeAm_Bo00

Saint Rosa

Wednesday, July 9th, 2008

Thank you Universe for bringing Rosa into our lives! Where ALS has been stealing life from Aiden and me, Rosa is giving it back. Rosa is a pure soul, with a beautiful giving heart. I hope she knows that she is much more than a highly valued employee in this house… she is a friend, a sister, a mother. We love her and are very grateful to her. She keeps the sun shining.

-kara

Filmmaker Ben Byer

Saturday, July 5th, 2008

Ben Byer was born in 1971. He was diagnosed with ALS in 2002 at the age of 31. In 2003 he co-founded ALS Film Fund with his sister Rebeccah Rush to produce original works of art, whether film, theatre, sculpture or other intended to create positive change for ALS sufferers around the world.

Early in the morning of July 3, Ben Byer lost his battle against ALS.

His documentary film chronicling his new life since ALS is called Indestructible.